*Facebook Friends: I am pretty sure a whole panel could have been done about Facebook/social media. The whole panel advised against being friends with clients on Facebook as this is technically a dual relationship and conflict of interest.
*Facebook Pictures: Do not post pictures of you with your clients on your personal face book page. Again, if you want to post pictures on your business page that is ok but you need to have a release signed by the families and you should also still protect confidentiality: don’t put names
*Facebook Status Updates: Do not post status updates about your job. Examples were given of people (not behavior analysts just people) who have lost jobs and/or been sued over face book status updates. It is ok to say positive things such as “I love my job” or “what a great day” but be careful about making comments about work that are negative. It would be better to say “rough day” or “I am stressed”. NEVER post anything directly about your clients such as “my client did…..” even if you don’t use the client’s name people might figure out who you are talking about.
Dr. Bailey's Discussion on Capitalism and ABA
This was probably one of my favorite presentations during the conference. The main point of this presentation was that people use to join the field of behavior analysis out of a motivation for understanding human behavior, a motivation for becoming better teachers, and a love for the science of behavior. Unfortunately, the rise in demand because of the recognition that this science can be applied and used to successfully develop skills for children with autism has changed the motivation for some people to join the field. Some people are starting to join the field out of a motivation to make money. This is important for providers and parents to understand. Ethical behavior analysts are concerned about affecting socially significant behavior change and are not concerned about how much money they will be making. We should first be concerned about assisting our clients and secondly be concerned about pay. Some of the take home points in this presentation were:
* Behavior analysis is a science so marketing tactics are not appropriate. It should be about effective treatment not profit. We likely need an 8th dimension (from Baer, Wolf, Risley’s 7 dimensions of behavior analysis) to examine the business side of ABA
*It is important to remember our Values:
Values of ABA
-respect science
-search truth
-experimental control
-reliability of findings
-effective outcomes
-generalization
Personal Values
-empathy
-caring
-kindness
-passionate about ABA
*Recommendation Start asking businesses who employ behavior analysts to sign onto the commitment to ethical business practices. This is Draft #1:
Code of Ethics for Behavioral Organizations
-enforce BACB guidelines for responsible conduct and conduct training on ethics
-will only hire qualified personnel for positions that involve the delivery of behavioral services
-will not ask any BCBAs to violate the BCBA guidelines for Responsible Conduct
-We will not advance any other contingencies (money) that will influence behavior to violate guidelines
-will support any BCBA who comes forward with any claim of undue pressure to violate the BACB guideline
**person being hired should ask the company if they adhere to this code of ethics
*We Have to have integrity. We need to be ethical entrepreneurs:
-protect client
-do good work
-make reasonable profit
-respect profession
*BOTTOM LINE: Uphold science of behavior - wrangle in aba for profit (by promoting ethical business practices as listed above) - need to have quality of treatment
Children receiving intensive ABA (more than 20 hours of “intervention time”/week plus high parental involvement) or clients who received ABA (around 20 hours of “intervention time/week plus parental involvement) and just tried alternative interventions made the most progress.
Children receiving less than 20 hours of ABA and alternative treatments (diets, supplements, etc) made the least progress. Graphs below will further explain this.
Average Outcome: 100 = Mainstream, 50 = Moderate progress, 25 = some progress
Number of clients by treatment type and outcome
It wouldn't let me post the color code. GREEN = Mainstream YELLOW = 50% progress RED = Less than 50% progress
The above graph shows the number of children receiving each type of intervention and the progress that was made. Parents were most likely to do less than 20 hours of ABA. Parents were least likely to do intensive ABA and alternative treatments.
Outcome by type of Autism: 100 = Mainstream, 50 = Moderate progress 25 = some progress
BLUE = Classic Autism YELLOW = Comorbid Disability GREEN = PDD NOS ORANGE = Comorbid Medical
Children who presented with classic autism (little to no language, repetitive behaviors, tantrums) had the best outcomes overall. Most likely to acheive mainstreaming with either intensive ABA or ABA and just trying alternative treatments. Children who presented with PDD NOS (some language, most affected in areas of social skills and play) made significant progress with less than 20 hours of ABA. Parents of these children were more likely to just do ABA, to do less hours of ABA, and to not try alternative interventions. Children who presented with comorbid disabilities (symptoms of autism: little to no language, repetitive behaviors, tantrums and symptoms of other disabilities: difficulty attending even to preferred materials, slow progress in all skill areas, etc) and children who presented with comorbid medical issues (seizures, chronic constipation/bowel difficulties, high probability of getting sick, etc) did not make as much progress. Parents of these children were more likely to do ABA and alternative treatments. None of the children received just intensive ABA. This is not to say that these children will not make progress but that based on the information I had, it was more difficult to make progress with some of these children. Please keep in mind that I am a behavior analyst so all of my information relates to children receiving behavior analytic services. I also think this information is important as it can help inform further research.
Participation Requirements
Participation in monthly meetings: parent/guardians are expected to be present for each monthly meeting because their child’s treatment programming will be discussed and changed at this time. It is imperative to have the parent/guardian present in order to provide the best treatment to the child and to receive feedback and input from the parent/guardian.
Participation in training regarding child’s programming: Parent/guardian actively participates in training conducted by the consultant.
Implementation of reduction behavior protocols: Parent/guardian actively participates in training on how to follow protocols set in place by consultant in order to reduce behaviors. Parent/guardian implements behavior protocols consistently and notifies consultant if the protocols are too difficult to follow. Parent/guardian allows therapist to conduct integrity checklist and provide feedback on adherence to protocols.
Generalize and Practice targets with child: The parent/guardian will be informed by therapist what skills their child is working on. The parent/guardian when practice these skills throughout the day in the child’s natural environment to increase generalization.
Following through with day-long programs: Parent/guardian follows the protocol for day-long programs such as toilet training, feeding programs, or sleeping programs.
Procedure for Lack of Participation
The following is an explanation of the steps that will be taken if a parent/guardian is not participating in their child’s programming.
1. The first time that a parent or guardian does not meet one of the participation requirements, the consultant will provide the parent or guardian with a verbal warning reminding the parent or guardian of the participation requirements. The consultant will explain clearly to the parent or guardian where their participation is lacking. The consultant will offer more training if this is part of the issue.
2. The second time that a parent or guardian does not meet one of the participation requirements, the consultant will provide the parent or guardian with a written notice reminding the parent or guardian of the participation policy. The notice will clearly explain to the parent or guardian where their participation is lacking. The consultant will offer more training if this is part of the issue.
3. The third time that parent or guardian does not meet one of the participation requirements, the consultant will meet with the parent or guardian and provide them a final written notice reminding the parent or guardian of the participation policy. The notice will clearly explain to the parent or guardian where their participation is lacking. The case manager and consultant will work closely with the parent or guardian to provide the training necessary to correct the issue. Additionally, the notice will explain to the parent that if the parent or guardian does not meet the participation requirements again, the child’s services will be discontinued.
4. The fourth time that a parent or guardian does not meet one of the participation requirements, the child’s services will be discontinued on the grounds that I cannot provide effective treatment if the parent or guardian is not participating in the child’s programming. The consultant will meet with the parent or guardian to explain to the parent where their participation is lacking. Services will be faded back according to a fade plan that will be individually determined for each child.
Working Together for the Success of Each Child
Megan will work closely with every parent or guardian in order to ensure that parent participation is as easy and enjoyable as possible for every parent or guardian. When issues do arise, the cconsultant will work closely with the parent or guardian to determine how to resolve the issue. When parents or guardians participate fully in their child’s programming, they should see more progress from their child and have a better understanding of how to respond to various behaviors.
Mand Training Checklist
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Yes |
NO |
NA |
Checklist Item |
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Environmental Set Up |
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-Restricts access to preferred items by placing them out of reach |
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-Requires XXXX to request item before allowing access |
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Shaping Requests |
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-Allows immediate access to item if XXXX makes appropriate request: eye contact, clear, full sentence |
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-Follows prompt hierarchy to shape request if XXXX doesn’t make appropriate request: expectant look, reminder, full prompt |
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-Allows access to item only after XXXX makes the request with eye contact and a clear full sentence |
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-If XXXX uses wording that is not appropriate, prompts XXXX with more appropriate wording |
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-Only allows access to item if XXXX says with appropriate wording, eye contact, and clear full sentence |
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Allowing Access |
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-If XXXX makes appropriate request: eye contact and a clear full sentence, allows immediate access to item |
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-When XXXX is highly interested in an item, requires him to complete a few demands before allowing access |
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-Occasionally takes turns between engaging with toy and completing demands |
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-does not always require XXXX to complete a demand and does not always provide immediate access to the item |
FEEDBACK:
Items that you did really well were:___________________________________________
________________________________________________________________________
Things to work on:________________________________________________________
________________________________________________________________________
SIGNATURES:
Monitor____________________________________
Trainee______________________________________
Example of a Parent Training Packet
Parent Training
Client: XXXX
Date:
Purpose: The purpose of this parent training activity is to train XXXX’s parents to appropriately respond to inappropriate behavior in order to reduce the occurrence of the inappropriate behavior. Once the training is completed, XXXX’s parents should be able to identify the type of situation and how to respond appropriately.
Inappropriate Behavior in Response to a Demand:
XXXX occasionally engages in inappropriate behavior when asked to do something that he would prefer not to do.
Definition of Behavior: Any instance of XXXX saying “stupid,” saying “go away,” whining, crying, screaming/yelling, dropping to the floor, aggressing towards others or objects or throwing items in response to a demand.
Procedure for decreasing behavior:
Procedure for Increasing Appropriate Behavior
Now that we know what the procedure is. Let’s role play and practice so that you can follow it with XXXX. I will be looking for the behaviors/steps listed in the checklist below:
Checklist for inappropriate behavior in response to a demand – Role Play
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Yes |
NO |
NA |
Checklist Item |
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-Presents demand |
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-XXXX knows what the consequence is for completing the demand |
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-Upon occurrence of inappropriate behavior: |
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-Prompts to use words when inappropriate behavior begins |
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-Prompts what words to say “I’m Mad” etc and still follows through with demand |
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-Discontinues prompting for using words if inappropriate behavior escalates |
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-Uses differential reinforcement for compliance: if complies quickly, provides praise; if needs prompts the whole time doesn’t praise just acknowledges being done |
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Doesn’t bribe, provides consequences before presenting demand |
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FEEDBACK:
Items that you did really well were:___________________________________________
________________________________________________________________________
Things to work on:________________________________________________________
________________________________________________________________________
SIGNATURES:
Monitor____________________________________
Trainee______________________________________
Checklist for inappropriate behavior in response to a demand – with child
|
Yes |
NO |
NA |
Checklist Item |
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-Presents demand |
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-XXXX knows what the consequence is for completing the demand |
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-Upon occurrence of inappropriate behavior: |
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-Prompts to use words when inappropriate behavior begins |
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-Prompts what words to say “I’m Mad” etc and still follows through with demand |
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-Discontinues prompting for using words if inappropriate behavior escalates |
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-Uses differential reinforcement for compliance: if complies quickly, provides praise; if needs prompts the whole time doesn’t praise just acknowledges being done |
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Doesn’t bribe, provides consequences before presenting demand |
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FEEDBACK:
Items that you did really well were:___________________________________________
________________________________________________________________________
Things to work on:________________________________________________________
________________________________________________________________________
SIGNATURES:
Monitor____________________________________
Trainee______________________________________
Inappropriate Behavior in Response to Being Told “NO” or Access to Tangibles
XXXX also engages in inappropriate behavior when he is denied access to an item or an item is taken away.
Definition of Behavior: Any instance of XXXX saying “stupid,” saying “go away,” whining, crying, screaming/yelling, dropping to the floor, aggressing towards others or objects or throwing items in response to a demand.
Procedure for Reducing Inappropriate Behavior:
Procedure for increasing appropriate behavior:
Now that we know how to react to the behavior, let’s practice.
Checklist for inappropriate behavior in response to “no” – Role Play
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Yes |
NO |
NA |
Checklist Item |
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-When denying access, provides a choice of 2 other activities |
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-Immediately prompts XXXX to use his words after denying access |
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-Upon occurrence of inappropriate behavior: |
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-When child calms down, praises for being calm |
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-Doesn’t provide access to previously denied activity |
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-If previously denied activity is allowed to occur, only allows access if child asks nicely |
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FEEDBACK:
Items that you did really well were:___________________________________________
________________________________________________________________________
Things to work on:________________________________________________________
________________________________________________________________________
SIGNATURES:
Monitor____________________________________
Trainee______________________________________
Checklist for inappropriate behavior in response to “no” – with Child
|
Yes |
NO |
NA |
Checklist Item |
|
-When denying access, provides a choice of 2 other activities |
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-Immediately prompts XXXX to use his words after denying access |
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-Upon occurrence of inappropriate behavior: |
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-When child calms down, praises for being calm |
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-Doesn’t provide access to previously denied activity |
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-If previously denied activity is allowed to occur, only allows access if child asks nicely |
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FEEDBACK:
Items that you did really well were:___________________________________________
________________________________________________________________________
Things to work on:________________________________________________________
________________________________________________________________________
SIGNATURES:
Monitor____________________________________
Trainee______________________________________
Miscellaneous
(b) Functional assessment includes a variety of systematic information-gathering activities regarding factors influencing the occurrence of a behavior (e.g., antecedents, consequences, setting events, or motivating operations) including interview, direct observation, and experimental analysis.
If the behavior analyst has not trained the tutor/therapist how to collect data, nor collects data/analyzes the behavior herself, then she is violating 3.02 because the behavior is not being assessed for function. Additionally, if the behavior analyst trains the tutor how to collect data but never uses that data to develop an intervention plan, then she is violating 3.02 because the behavior is still not being analyzed.
3.03 Explaining Assessment Results - behavior analysts ensure that an explanation of the results is provided using language that is reasonably understandable to the person assessed or to another legally authorized person on behalf of the client. Regardless of whether the interpretation is done by the behavior analyst, by assistants, or others, behavior analysts take reasonable steps to ensure that appropriate explanations of results are given.
If the behavior analyst doesn't analyze the behavior in the first place, then 3.03 would automatically be violated because you can't explain the results if you don't analyze the behavior. Sometimes the behavior analyst will analyze the behavior but will not explain the results thus violating 3.03.
3.05 Describing Program Objectives - The behavior analyst describes, in writing, the objectives of the behavior change program to the client or client-surrogate (see below) before attempting to implement the program. And to the extent possible, a risk-benefit analysis should be conducted on the procedures to be implemented to reach the objective.
Again if 3.02, and 3.03 are violated then 3.0 is automatically violated. Sometimes though a behavior analyst will assess the behavior but not type up an intervention plan with objectives. If this is not done, it makes it very hard to train the tutor/therapist and parent and it violates 3.05.
4.01 Describing conditions for Program Success - The behavior analyst describes to the client or client-surrogate the environmental conditions that are necessary for the program to be effective.
If the behavior analyst is not providing training, then he/she is not describing to the parent and tutor/therapist the conditions for success of the program. Typically, parent training and tutor/therapist training is one of the conditions that are necessary for the success of the program.
4.04 Approving Interventions - The behavior analyst must obtain the client’s or client-surrogate’s approval in writing of the behavior intervention procedures before implementing them.
If the behavior analyst is not providing training to the parent, then he/she is not getting approval for the interventions because typically the interventions are just being done without the parent knowing what is happening.
5.11 Training, Supervision and Safety - Behavior analysts provide proper training, supervision, and safety precautions to their employees or supervisees and take reasonable steps to see that such persons perform services responsibly, competently, and ethically. If institutional policies, procedures, or practices prevent fulfillment of this obligation, behavior analysts attempt to modify their role or to correct the situation to the extent feasible.
If the therapist/tutor is an employee or supervisee of the BCBA and the BCBA is not providing training, supervision and safety precautions, then 5.11 is being violated.
In this section it is also important to note that the Tricare Autism Demonstration Project requires monthly parent training so if a child is receiving services through this project and the parent is not receiving parent training, the BCBA is violating the conditions set out by Tricare and violating another guideline 2.14 Accuracy in reports to those who pay for services (In their reports to those who pay for services or sources of research, project, or program funding, behavior analysts accurately state the nature of the research or service provided, the fees or charges, and where applicable, the identity of the provider, the findings, and other required descriptive data.). The Demonstration project also requires that tutors/therapists receive ongoing supervision and TRAINING as well. Most companies will come out to observe the tutor but not provide training. They need to do both in order to meet the requirements of the Demonstration project.
Why the lack of training?
I think there are a few reasons for a lack of training:
1. For a lot of providers, the focus is on the child so they are typically caught up in doing what they can with the child while they are there. So the lack of training isn't purposeful or meant to hinder the child's progress, the provider is just so caught up in the child, that they don't realize training the tutors and parents is key to the child's progress.
2. Sometimes parents don't realize they need training and treat ABA intervention similar to speech or OT where a person comes and works with the child and then leaves. The principles, techniques, and programming laid out in an ABA intervention package have to be followed 24/7 or the intervention will not be as effective. Therefore, it is crucial that parents receive training. It is also important for the BCBA to lay out from the start of services that training is required.
3. Sometimes the BCBA is so booked with clients, that she does not have time to train the tutors/therapist. There is an easy fix for this one, include training time in your schedule and do not book so many clients. It is more important that your clients receive effective treatment then take on too many clients who receive mediocre intervention due to a lack of training.
4. Sometimes the BCBA does not know how to provide training. Some programs don't train BCBAs how to provide training to others on the interventions. There are certain techniques that work better than others when providing training. Behavior Skills Training is typically the most effective technique but not all BCBAs know what this is or how to do it so they just don't provide training. Some will provide training but it is poorly done so it is ineffective.
5. Sometimes the BCBA does not realize that training is a crucial part of the intervention package. The program that trained them didn't have much training or focus much on training so they don't realize it is something they need to be doing.
6. Sometimes parents are resistant to training because it is not done well and they are trained on the wrong things. In my experience, it is best to train the parent using terminology that they understand, examples from their lives (hopefully related to their child), to not bog them down in understanding behavior analysis in the same way that we do, and to teach them how to follow the intervention within the natural environment. I very rarely have a parent sit down and do drills with a child (I very rarely do drills with a child). However, I will teach them how to intersperse targets during the daily routine and how to react/prevent challenging behavior within the daily routine. If a BCBA is trying to teach a parent how to run a session or make them learn all of our terminology in the same way we learn it, that is typically going to be a big turn off for parents and they won't want to participate in training.
7. Second to last and almost as important, sometimes training does not occur because of limited funding. Sometimes parents can only afford the rate of the tutor and not the rate of the BCBA. In this situation a few things can and should be done. 1. If the BCBA still wants to provide services to the client, the rates could be lowered based on what the client is able to pay and a minimum amount of supervision/training should be set per either week or month. If the parents really cannot afford to pay the minimum should be at least 1 hour/month on site training with the parent and the tutor. And then the tutor should meet with the BCBA and receive feedback and training and then take that back to the child and train the parent but only if the tutor is experience enough to provide such training. 2. A budget should be made with the family where they receive x amount of tutor hours per month and then x amount of BCBA hours per month. This might mean not having as many sessions with the tutor so that the BCBA can still provide services at his standard rate but the overall effectiveness of therapy will benefit. 4. If these solutions will not work, the BCBA should refer the parent to a company that can use one of these solutions. Because training of the tutor and parent is key to providing effective treatment, if the BCBA cannot figure out a way to provide these in the amount that is necessary for the client either because of funding or time constraints, then the BCBA should not take on the client. Otherwise the client's money is being wasted and the child might receive counter productive services.
8. Lastly, and most importantly sometimes the BCBA doesn't know how to handle the behavior or skill so they can't provide training. This is most important because in a situation like this, the BCBA should seek the supervision and consultation of another BCBA who does know how to handle the behavior or skill. With all of the message boards and internet pages for behavior analysis now a days, there is no excuse for not finding someone who can provide ideas/supervision/consultation to a BCBA who does not know how to handle a certain behavior.
What Does a Lack of Training Look Like
There are some obvious signs and some not so obvious signs that adequate training is not occurring:
1. The BCBA never talks to the parent or therapist/tutor about the programming. The BCBA does not explain what programs are being done, what interventions are in place for challenging behaviors, how to practice these programs, and how to intervene for challenging behaviors.
2. The child is continuously engaging in the same challenging behavior or having the same programming issue with acquiring certain skills. If the BCBA is providing proper training, these issues would be analyzed and the plans would be modified.
3. A treatment plan, behavior plan, or plan of intervention does not exist. It is basically impossible to provide training on a child's programming if there is not a treatment plan that outlines programming, reinforcement criteria, prompting criteria, other instructional techniques, and plans for reducing challenging behavior.
4. When the tutor/therapist or parent asks the BCBA to assist with a skill, the BCBA provides short answers (or sometimes no answers) but never sits down and trains the tutor/therapist or parent on the skill. Effective training typically consists of: explanation of the plan, modeling the technique, role playing the technique, providing feedback, and practicing the technique in the actual teaching/natural setting.
5. There is not a system in place for monitoring the intervention with the tutor or parent. Integrity checklist are typically used to monitor whether or not an intervention is being implemented correctly. I don't use them for every little thing I do but when a reduction program is complicated or a new acquisition program requires multiple steps or a child really needs prompting done a certain way, I will use integrity checklists to show the tutor or parent how well they are following the plan.
6. The parent or tutor/therapist thinks they really have no clue what to do with the child.
Ways to address this issue
I have split this into two categories: one for behavior analysts and one for parents or tutors.
If you are a BCBA who has difficulty training parents/tutors:
1. Make it part of your company's policy that parents and tutors participate in a minimum amount of training each WEEK. The minimum will depend on the client but I will do anywhere from 15 minutes to 1 hour and sometimes more.
2. Schedule training into your session. Sometimes parents are very busy and use session time to get all of the things done that they need to get done. This is fine, but they still need to know how to interact with their child. Talk to the parent and tutor/therapist and set up specific days/times where training will occur.
3. Use behavior skills training. Google it and you will find tons of information. I also have a blog about it if you go here BST
4. Provide the training specific to the client and make it understandable. Try to teach parents how to use behavioral techniques and follow the child's program within the context of the natural environment.
5. Have contingencies set up. If possible try to do a reinforcement contingency among all of your clients. You can catch parents, tutors/therapist doing a good job following the intervention plan and give them a ticket. At the end of the month a ticket is pulled for a prize. At the very least praise and reinforce parents or tutors/therapists when you see them doing a great job or at least trying to follow the intervention (don't forget to shape the behavior). Just as importantly, have a policy in place for parents or tutors/therapist who refuse to be trained or follow the protocol. If you are not able to provide effective services because of a lack of participation, you have to discontinue services. Have this in your company's policies. I do a three strikes and your out where I will tell the person 3 times how they are not participating and work with them to fix this: provide additional training, adjust the schedule, make the plan more feasible, etc and if they still don't comply, I have to terminate services. There are too many children who need services and are on waitlist to allow a parent to not participate in their child's programming. DO NOT however, just discontinue services without ever explaining to the parent that they are required to participate or giving them warnings and feedback and working with them to fix the issue first. I have worked at places where this happened and the parents were infuriated (rightfully so) because they didn't even know that there was an issue and the company just terminated services.
6. Use integrity checklists. Contact me if you need more info on this but you have to monitor the performance of your parents and the tutors/therapists and give them positive and constructive feedback on how they can better follow the plans.
If you are a parent or tutor/therapist who is not receiving proper training:
1. Ask your BCBA for more training. If the BCBA refuses or doesn't really respond print out a copy of this blog and ask them why they are not doing training. Make sure to point out to them that by not training you, they are in violation of the BACB Code of Conduct
2. Try to just observe sessions with your child (if you are a parent) or of other therapists (if you are a therapist). You can learn a lot by observing as long as the session is being done correctly.
3. Ask the BCBA what their training policy is and if they don't have one push them to create one. If you work for the company, offer to help create one.
4. If the training is over your head or not relevant to you and your child (client), ask the BCBA to make it more relevant to you and to break it down more. Ask for a typed up plan and/or training packet and ask the BCBA to use behavior skills training to teach you the skills.
5. If you are a tutor or parent who is paying out of pocket and the BCBA is not providing training to either of you because of this, talk to them and work out a situation where this can happen. Determine as a team how much supervision/training is necessary for this particular child and figure out a way to make that happen whether it means cutting down on some of the tutor time and convincing the BCBA to lower his rate because you are paying out of pocket. It is almost pointless to receive services from a tutor if you are not receiving adequate training/supervision from the BCBA.
Resources
Here are some resources related to parent training and tutor/therapist training
-Most publications by Robert and Lynn Koegel include descriptions of how to train. Visit their website for more information
-For more information on the BACB Code of Conduct, click here
Articles on Parent Training:
1. Lafaskas and Sturmey (2007) studied the effects of using Behavior Skills Training to teach parents to use Discrete Trial Teaching. The parents learned the skill and the children acquired skills faster.
2. Chaabane, Albar-Morgan, DeBar (2009) studied the effects of training parents to teach their children to request items using PECS. The children acquired novel requests and the parents successfully implemented the protocol.
3. Osborne and colleagues (2008) studied the effects of stress on effectiveness of treatment. They found that parent stress counteracted the effectiveness of treatment. Therefore, when doing parent training it is important to identify stressors and help train the parents in a way that will reduce these stressors and increase the effectiveness of therapy.
4. Iovanonne and colleagues (2003) identified components of effective programming as: (a) individualized supports and services for students and families, (b) systematic instruction, (c) comprehensible/structured learning environments, (d) specialized curriculum content, (e) functional approach to problem behavior, and (f) family involvement.
5. Dawson and colleagues (2010) ) compared the effectiveness of the Early Start Denver Model, which is a developmental behavioral approach to intervention that consists mostly of training the parent and the tutors to a community model and found that the Denver model was more effective.
I know that there is more research than this but I unfortunately cannot find where I saved the information and do not have time to look for more links. Please feel free to comment on additional research.
I participate on a few message boards related to autism, autism intervention, and behavior analysis. Recently, someone posted a discussion about a “new cure” for autism. One of the members of the message board responded to the post and I think his description of what snake oil salesmen are doing to families and people diagnosed with autism and what it means to be autistic is a very well articulated. I asked him if I could re-post his response for others to see, and he said yes. Below is his original post followed by some tips that he gave when I sent him an email asking if I could post this.
“In response to whatever is commented above. Autism is not treatable, you cannot create a new highway of neurotransmitters between the left side of the brain and he right side of the brain with Omega 3 (just an example). Such products stimulate the processes already there like road maintenance. Any healthy diet or supplement will have a possitive effect on people with Autism. However, do the same test on people without autism and the results are the same.
My example; take the study in prisons with high violence rates. They provided better quality food with a higher vitamine and mineral concentration and the violence got significantly less. Case conclusion; people who feel more healthy are more relaxed and are lesser influenced by triggers from the outside.
This is what happens when you do treatments like this to autistic children. Food and their quality is vital for body performance. You don't have to have a disorder for the benefits. To sell it as a cure is criminal towards the parents of such children. Autism is a taboe because people dop not understand how broad the autistic spectrum is. Actually, autism is not such a bad deal when people listen to the message first instead of how the message is said and feel "hurt".
we have to be sooooo politically correct because we are afraid that one statement that could be interpreted differently may cause you your carreer that it has penetrated privat life. This is exactly one of the weak spots of people with autism. The outside world makes it a big deal especially the ones who feel they can make a lot of money by milking the autism cow. Parents are desperate to find a cure and will spent money to find and it to help their beloved children. They are emotionally not realistic and try anything.
In my perspective, its a new way of crime.
You can train people with autism how to handle situations (some better than others, Aspergers have it more easier), you can get them on a healthier diet and the most important thing of all, you can love them and treat them as regular human beings by showing them the repsect that you would like to receive from others yourself.
I think that there are people like XXXX who do believe they are doing the good thing, he is just not unbiased enough to see the truth behind the whole thing and he does not really understand what autism is, certainly not what it means to be autistic.
XXXX, you are working on a hoax. The responses above are meant to convince you. I know by experience that it does not work like this. You are like the parents, you want to believe it's true. You cannot say acradabra and turn water into wine, you still have to feed the water to the soil so the grapes can grow and make wine from the grapes, there is no short-cut with a magical pill.
I don't see autism as a disorder. Others make it a disorder. because of my autism, I have a talent that surpases many others and even more important, I am needed. My IQ surpases 160 (EU scale) (out of 180 max), that's makes me incredible (just like Alex and Partick and many others). because of people like us, we have computers with micro chips and Iphones, frozen TV dinners etc. The world cannot do without us anymore so stop trying to cure us and accepts us like who we are for what we are.
As a message to parents, don't let the outside world bring you down. Love you child and stimulate him as much as you can. You will see, your child is perfectly happy with who he/she is. Again, it's the outside world who creates the problems.”
Here are the suggestions/tips from the poster as well. Please keep in mind that these are his suggestions. They are wonderful suggestions but every child is different so the suggestions might not be what your child needs. Nevertheless, they are still excellent suggestions:
“How colour full is your living room - colour full pictures, strange shaped sculptures untidy rooms are always in focus of the autistic eye and prevents their brain to settle down for a moment. Its the same with class rooms. Its very distracting
How structured is the day - They want to know what comes. If you visit family or the doctors or go shopping, prepare your child by a do and don't list. repeat this list everytime you do something, like: don't scream, don't run, let people finsh their sentence before interupting and ask questions etc. This means on before hand.... not while you do it (in the car before you step out or in the morning going through the day etc)
Stimulate what they are good at - do sums, they like numbers, don't let them fold origami or colour with pencils, their motoristic skills are not good enough and they get frustrated, the same with their handwriting, they don't have the motoristic skills to have a readable handwriting, let them type but don't let them stop learning how to write. “
What does it mean to say child is done with ABA?
The two main reasons a a parent or behavior analyst would have for saying a child is done with ABA are:
1. Behavior analyst is not trained to work with the skills the child needs
I have seen numerous situations where a program or individual behavior analyst will "graduate" a client saying that the child no longer needs ABA. The child still has deficits typically in social skills and more advanced language/academic skills. The parents typically have no idea how to work on these skills and unfortunately the behavior analyst thinks he/she doesn't either. Rather than tell the parent that the behavior analyst has gone as far as he/she can with the child based on his/her training, the behavior analyst tells the parent that the child has graduated and can be done with ABA. This happened so many times at a previous place I worked and the parents were so upset. Then they were left wondering what to do to help their child continue to make gains and mistakingly thinking that ABA could no longer help them.
Some programs recognize that their main training is with early learner skills and will tell parents when starting that they only work with children of certain ages. There are early intervention programs that only work with a child to age 3, and then there are some programs that only work with a child to age 6, etc. When children are done with these programs, it is the duty of the program based on the behavior analysis code of ethics, to recommend options for the parent so that the child can continue to develop skills. If a behavior analyst has not told a parent that they will end services when their child reaches a certain age, but the child reaches a point where the behavior analyst is not adequately trained to work on the skills the child needs, the behavior analyst should not just end services but either receive training and research how to teach the skills or recommend other behavior analyst who are trained to work on the more advanced skills.
A lot of behavior analyst also use the ABLLS or VB MAPP to develop programming for a child. Often, once the child has completed all or most of the programs in these assessments, a behavior analyst might say that the child is done with ABA but the child still has deficits in language, social skills, academics, academic skills, etc. So what is the next step? Typically in this situation the behavior analyst ends services and the parent seeks out other types of programs. Some examples are relationship development intervention, brain training, other social skills curriculums, social skills groups, tutors, etc. Will these programs be helpful for the child? It is hard to say because it will depend on: if the programs address the child's areas of deficit and whether or not the programs make use of behavior analytic techniques. A child might make progress using these other programs without the input of a behavior analyst but the most effective method of incorporating these programs is to use the curriculums while incorporating the principles of behavior analysis. In this situation there are three options:
1. The parent can find someone whose main training is in the areas that the child still has deficits but is not in behavior analysis
2. The parent can find the person mentioned previously and have the behavior analyst consult on how to incorporate behavior analytic principles
3. The parent can ask her behavior analyst to incorporate curriculums that are needed for the child and/or to recommend another behavior analyst who has experience with the deficits.
No matter which solution is chosen, the best results will always be achieved when the principles of behavior analysis are incorporated. So the best solution would be either number 2 or number 3. A lot of other curriculums/approaches will say that behavior analysis isn't used but when you break down what is done during the sessions, the programs incorporate many principles of behavior analysis. Whether a program wants to admit it or not, or even know it or not, effective programs are always incorporating the principles of learning. I could go into more detail but that is a topic for another blog.
2. The parent is adequately trained
The other situation I have seen where services are ended with the behavior analyst are when the parent is adequately trained. This means the parent as learned through direct training and experience with the child how to incorporate the principles of behavior analysis into everyday life and apply them when necessary with the child. Typically, in these situations the parent will remain in contact with the behavior analyst and consult as needed. Otherwise, the parent continues to determine the curriculum and programs needed for the child and incorporates the principles of behavior analysis. The parent might hire a tutor or someone to help determine the curriculum but the parent directs the tutor on how to work with the child. The parent also continues to follow the principles of behavior analysis when responding to inappropriate behaviors and throughout the daily routine.
Behavior Analysis is Technically Never "Done"
While services with a behavior analyst might be done, incorporating the principles of learning and behavior analysis should never be "done." Even if someone intentionally ends their formal ABA program, if the child is still learning and making gains, principles of learning are still at play. The most progress will be made though if those principles are intentionally incorporated.
Principles of behavior/learning never go away. The field of behavior analysis aims at identifying in real life what factors, methods, techniques result in behavior change/skill acquisition. Making use of this knowledge can result in changes not just for autistic children but in schools, colleges, work places, nursing homes, and society in general. Whether the parent is interested in trying RDI, Brain Training, Social Skills Training groups, etc when any curriculum or programming effectively incorporates principles of behavior/learning you will see more progress than when the program does not make use of these principles.
A behavior analyst may always be needed to some extent for a child on the spectrum if a parent does not know or does not feel comfortable with applying these techniques/principles. It will also depend on the extent that a child needs to have these techniques effectively applied. Even for typically developing children, parents or teachers who make use (either knowingly or just by natural tendencies) of principles and techniques of learning will have children who acquire skills faster than parents who do not have this knowledge and might not be effectively teaching their children. This holds true for professors, bosses, etc anyone in a position of requiring behavior/learning.
If a parent acquires the necessary skills to know how to prompt, reinforce, and adjust the environment when necessary (among other techniques), then their child will not always need a behavior analyst. This of course will depend on the child’s deficits and behavior. Even for a child who has a lot of deficits or intense behavior, if the parent or others working with the child are trained well enough, the level of input needed from a BCBA may be minimal.
So the point here is even if you end your formal programming, it is always best to still incorporate the principles of behavior analysis/learning so that your child will make the most progress.
Ending a formal ABA program
I am not sure if there is any research on this topic but my preferred way to end a formal ABA program is to fade the behavior analyst out of the situation and remain consultation on an as needed basis. If the parent typically receives services a few days/week, services are dropped to 1x/wk, then 1x/2wks, 1x/month, 1x/3 months (if needed), 1x/6 months (if needed), and 1x/year. Using the fade out procedure ensures that a child/parent really is ready to no longer receive input from a behavior analyst. A lot of times a child will do well so the services are just ended and then all of the old behaviors/issues arise again. Fading out the behavior analyst allows the parent to receive training and feedback on how to continue to achieve results with their child. Even during the less frequent times, the behavior analyst or a behavior analyst should always be available for a consult when necessary.
Examples of situations:
Here are some examples of situations where a parent or behavior analyst might decide to end formal services.
A student possesses most necessary skills to succeed academically and socially. The student is staring soccer and art classes. Does the behavior analyst need to be involved?
If the parent is able to provide training and guidance to the coach and art teacher, then the behavior analyst is most likely not necessary. If the parent does not feel comfortable or is unable to provide guidance, then the behavior analyst might be involved initially and then fade out. A trial soccer practice/art class might also be done to see if the coach or art teacher even need input from the parent/behavior analyst. It is possible that the child will do so well that no guidance is necessary.
A Student is advanced academically but lacks social skills. The BCBA lacks training in social skills and the parent does not feel comfortable being the person responsible for teaching these skills. Should the BCBA continue to provide services?
There are several options for this situation. The parent could enroll the child in social skills groups. When doing this, the parent should find groups that incorporate the principles of behavior analysis to promote learning and acquisition of the skills. If the group does not incorporate principles of behavior analysis, the behavior analyst can provide consultation on how to teach the child. If a group does not exist, the behavior analyst can either research social skills curriculums and develop programs for the child based on the child's deficits or refer the family to a behavior analyst who has training in teaching social skills.
A Student is advanced academically, possesses social skills, but still engages in intense outbursts/aggression occasionally for different reasons. The parent adequately implements behavior reduction programs with the guidance of the BCBA but needs assistance when the behavior changes. Should the BCBA continue to provide services?
For this situation, the BCBA might not be needed on a frequent basis but should still provide consultation services to the client. If the child still engages in intense outbursts/aggression and the parent is not always capable of responding appropriately, the behavior analyst can develop plans and provide training when needed.
A Student has completed ABLLS-R but struggles academically and with certain skills such as language comprehension and auditory processing. The BCBA's training is mostly with using the ABLLS-R but the BCBA is willing to research other curriculums/programs. Should the BCBA continue services?
There are a couple of options for this situation as well. If the BCBA is willing to research other curriculums and programs, the services should be maintained because they will be able to effectively incorporate the principles of behavior analysis to help the child gain skills. If the parent is unsure of the BCBA's ability to determine new programming, the parent might want to seek the input of a provider with experience addressing these skills and have the BCBA consult on how to teach the child.